Agamree is as effective as traditional corticosteroids at preserving walking ability but carries a lower risk of side effects ...

Caring for three sons with Duchenne MD means that all columnist Betty Vertin has left are the leftovers, but this week, even they ran out.

Columnist Robin Stemple and others in the Western Pennsylvania chapter of the FSHD Society raised $85,000 for research toward ...

Sarepta said DMD treatments Amondys 45 and Vyondys 53 show 'positive and encouraging trends' even though a trial failed to ...

Dosing has begun in a long-term extension study testing Satellos Bioscience’s experimental oral therapy SAT-3247 in men with ...

In an effort to improve his heart health, columnist Shalom Lim trials a new medication for his cardiomyopathy, a complication ...

Whether it's transportation, education, or treatment, the more choices people with LGMD have, the better, says columnist.

Columnist Betty Vertin shares how she explained Duchenne muscular dystrophy to her sons, who received their DMD diagnosis at a young age.

Columnist Betty Vertin marks each success with Duchenne MD with the refrain, "Not today, Duchenne," but she dreads when "today" will come.

This Saturday, I turn 30. My birthday lands on the same day that many of us in Singapore, where I live, will wear purple for our annual disability inclusion event, the Purple Parade. In the past three ...

Columnist Betty Vertin doesn't often dwell on her caregiver grief, but sometimes she needs to embrace it and let it flow through her.